This conference will explore how the law currently deals with claims to rights asserted in respect of the control, custody, management, ‘ownership’, sharing and dissemination of (for research or for clinical purposes) medical and genetic information derived from the human body. It will consider intellectual property rights and claims in relation to the human body, particularly in relation to likely future developments in competing major jurisdictions. A particular focus of this conference will be the relationship between clinicians and researchers on the one hand, and donors, research subjects and even entire communities on the other: what kind of ethical, legal and social rights might be claimed for or asserted by donors of physical samples (including genomic samples) and of the data pertaining to such donors, and what might be the impact of such claims on the conduct of research? Is there an obligation for the return of benefits by researchers to their research subjects, and if so, in what terms might this obligation be best articulated? Given that the cooperation and consent of research subjects and donors is indispensable in the conduct of research, how might a programme of public outreach and education be best implemented?
Programme Booklet:
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Conference Report:
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Theme 2: Beyond the Physical: Pure Information
Programme Booklet:
Click HERE
Conference Report:
Click HERE
Programme:
Tuesday 6 November 2018
| 9:00 – 9:30 am | Registration |
| 9:30 – 9:40am | Welcome Address |
| Mr Terry Kaan, Co-Director, Centre for Medical Ethics & Law, the University of Hong Kong |
Theme 1: Physical Property in the Body II
| 9:40 – 10:00am |
PRESENTATION 1:
Michael Vidler
Principal, Vidler & Co., Solicitors, Hong Kong
Handling Foetal Remains – A Hong Kong case study: obtaining a dignified and respectful internment for little Wally
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| 10:00 – 10:20am | PRESENTATION 2: Philip Beh Associate Professor, Department of Pathology, the Li Ka Shing Faculty of Medicine; and Co-Director, Centre for Medical Ethics & Law, the University of Hong Kong WHO OWNS YOUR BODY – Please come and collect? Click HERE for the video Click HERE for the presentation slides |
| 10:20 – 10:50am | Break |
| 10:50 – 11:10 am |
PRESENTATION 3:
Mika Suzuki
Uehiro Research Fellow , Uehiro Research Division for iPS Cell Ethics, Center for iPS Cell Research and Application(CiRA), Kyoto University, Japan Building the Trust: The role of the professional and the role of the general public |
| 11:10 – 11:30 am |
PRESENTATION 4:
Morten Øien
Legal Advisor/Member of the International Society for Biological and Environmental Repositories Governance Committee
Good Biobank Governance in the Age of Personalized Medicine: From theory to practice Click HERE for the video
Click HERE for the presentation slides
|
| 11:30 am – 12:30 pm |
Roundtable Discussion and Q & A
Chair: Ron Zimmern, Chairman, Board of Trustees, PHG Foundation, the University of Cambridge, the United Kingdom
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| 12:30 pm – 2:00 pm | Lunch |
Theme 2: Beyond the Physical: Pure Information
| 2:00 – 2:20pm |
PRESENTATION 1: Alison Hall
Head of Humanities, PHG Foundation, the University of Cambridge, the United Kingdom
Genetic data, automated processing and the EU General Data Protection Regulation |
| 2:20 – 2:40pm |
PRESENTATION 2:
Gerard Porter
Lecturer in Medical Law & Ethics, Director of Ethics & Integrity, Edinburgh Law School, the University of Edinburgh, the United Kingdom
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| 2:40 – 3:00pm | PRESENTATION 3: Kathy Liddell Director, Centre for Law, Medicine and Life Sciences, the University of Cambridge, the United Kingdom
and
Mateo Aboy
Senior Research Scholar, Centre for Law, Medicine and Life Sciences, the University of Cambridge, the United Kingdom
The Impact of the (In)famous Myriad and Mayo Decisions
|
| 3:00 – 3:30pm | Break |
| 3:30 – 3:50pm |
PRESENTATION 4:
Ya-Hong Li
Associate Professor and Director of the LLM Program in Intellectual Property (IP) and Information Technology, Faculty of Law, the University of Hong Kong
Issues in IP Protection for AI-generated works and inventions and implications to science and cultural development
|
| 3:50 – 4:50pm |
Roundtable Discussion and Q & A
Chair: Ron Zimmern, Chairman, Board of Trustees, PHG Foundation, the University of Cambridge, the United Kingdom
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Wednesday 7 November 2018
| 9:00 – 9:30am |
Registration
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Theme 3: The Gifts of the Body: Return, Education, Responsibility
| 9:30 – 9:50am |
PRESENTATION 1:
Roger Chennells
Consultant, Chennells Albertyn, Cape Town and Stellenbosch, South Africa
Benefit Sharing in Medical/ Genomic Research
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| 9:50 – 10:10am |
PRESENTATION 2: Sumin Kim
Graduate School/ Asian Institute for Bioethics and Health Law, Yonsei University, South Korea
Ethical and Regulatory Considerations on Biobanking in the Republic of Korea
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| 10:10 – 10:30am |
PRESENTATION 3:
Calvin Ho
Assistant Professor, Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore
Re-thinking Social Value in Access to and Benefit Sharing of Biological Materials and Related Data in Biomedical Research
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| 10:30 – 11:00am |
Break
|
| 11:00 – 11:20am |
PRESENTATION 4:
Koichi Mikami
Project Assistant Professor, Science Interpreter Training Program, KOMEX, University of Tokyo, Japan
‘Implicated’ Ownership and the Boundary of Public and Private – the Case of Regenerative Medicine in Japan
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| 11:20am – 12:20pm |
Roundtable Discussion and Q & A
Chair: Ron Zimmern, Chairman, Board of Trustees, PHG Foundation, the University of Cambridge, the United Kingdom
|
CPD Accreditation (The Law Society of Hong Kong):
6 November 2018 (9:40 am – 12:30 pm) – course code 20184636 (2 CPD points)
6 November 2018 (2:00 – 4:50 pm) – course code 20184637 (2 CPD points)
7 November 2018 (9:30 am – 12:20 pm) – course code 20184638 (2 CPD points) Continuing Medical Education (CME) Accreditation:
Click HERE
6 November 2018 (9:40 am – 12:30 pm) – course code 20184636 (2 CPD points)
6 November 2018 (2:00 – 4:50 pm) – course code 20184637 (2 CPD points)
7 November 2018 (9:30 am – 12:20 pm) – course code 20184638 (2 CPD points) Continuing Medical Education (CME) Accreditation:
Click HERE
