Human genomic research and innovation are dependent on access to large quantities of data. The “open science” movement has thus gained momentum and fosters the sharing of personal data, datasets, and research results. In such a context, research participants are encouraged to share their genetic materials to support scientific progress as a common good and researchers are encouraged to share their data on the basis that it can maximise the use of a valuable resource, and also lead to more reproducible science. In this webinar, our speakers consider the impact of personal data protection laws in Hong Kong SAR, Mainland China, Canada, the European Union and the United Kingdom on the sharing of human genetic data for biomedical research, as well as the “open science” movement more generally.
Webinar Summary: click here
Video Recording (click here to watch it on YouTube):
Programme, Abstracts & Biographies: click here
Background Document for the Webinar, “The GDPR, UK GDPR and international transfers of personal data“: click here
Chair
Dr Calvin Ho
Associate Professor of Law & Co-Director of the Centre for Medical Ethics and Law, The University of Hong Kong, Hong Kong, China
Introduction and brief remarks on genome data sharing in Hong Kong SAR
Speakers & Presentations
Dr Haihong Zhang
Office Director of Peking University Human Research Protection Programme, Health Science Center, Peking University, China
Title: An ethical perspective on the implications of the Personal Information Protection Law for human genomic research in China
Dr Colin Mitchell
Head of Humanities, PHG Foundation, University of Cambridge, United Kingdom
Title: The impact of the UK and EU General Data Protection Regulation (GDPR) on international genomic data sharing for research
Prof Yann Joly
Research Director, Centre of Genomics and Policy (CGP)
Professor, Department of Human Genetics, Faculty of Medicine
McGill University, Canada
Title: Canadian genome data sharing: Lessons learned from the experience of the CanCOGeN Network
Co-organisers:
Centre for Medical Ethics and Law, The University of Hong Kong
The PHG Foundation, University of Cambridge
Fees:
Free of charge
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