Abstract:
Fast evolving data-intensive research and the booming data-driven economy have profoundly affected the traditional regimes of both privacy protection and government transparency. In particular, the sharing and secondary use of personal data are becoming prominent in biomedical research, health services, and public governance, along with debates over its desirability and compatibility with existing legal and ethical standards which are often in tension. This workshop will examine the seemingly conflicting needs of data protection and open data (or data sharing) in different contexts of research and regulation that form parts of the new data landscape. It will highlight the changes in the diverse and often competing interests that underlie privacy and transparency, including such as human health promotion, public safety, personal dignity, and democratic accountability. By bringing scholars of health law, genomic studies, medical ethics, privacy law, and government transparency, etc., the workshop seeks to provide critiques of the concepts, principles or institutions of data control, especially those in Canada, UK, EU (concerning the General Data Protection Regulation), Taiwan, and China. It will also explore alternative ways to ease the complicated tension between privacy concerns and transparency needs.
This workshop is a joint effort of researchers from HKU Centre for Medical Ethics and Law, the McGill University Centre for Genomics and Policy, and the Cambridge University Centre for Law, Medicine and Life Science
Speakers:
• Dr. Clement Yongxi Chen, Postdoctoral Fellow at HKU Faculty of Law
• Dr. Edward Cheng, CIO of HKU and GMIT of the HKU-Shenzhen Hospital
• Dr. David Erdos, Lecturer at Cambridge University Centre for Law, Medicine and Life Sciences
• Dr. Chih-hsing Ho, Assistant Professor at Academia Sinica, Taiwan
• Mr. Mark Phillips, Research Associate at McGill University Centre for Genomics and Policy
• Prof. Agnes Tiwari, Head of HKU School of Nursing
• Ms. Jianyuan Yang, Counsel at Fangda Partners, China
• Dr. Stephanie Dyke, Research Associate at McGill University Centre for Genomics and Policy
Dr. Clement Yongxi Chen
Dr. Chen is a Postdoctoral Fellow at the Faculty of Law, The University of Hong Kong. He received his legal education at HKU (PhD), University of Paris 1 Panthèon-Sorbonne (D.U. 3ème Cycle «Le Droit en Europe» [postgraduate diploma], funded by the French Government Scholarship) and Sun Yat-sen University (LLM in Procedural Law and LLB in International Economic Law). His research areas include freedom of information, privacy and data protection, and comparative administrative law. His PhD thesis was awarded two prizes: Intersentia Prize for the Best PhD Thesis in Law 2013-2014, and HKU’s Award for Outstanding Research Postgraduate Student 2012-2013. He has participated in preparing the drafts for China’s first local rule on freedom of information as well as Guangdong Province’s regulation on informatization, and has been engaged in open government initiatives since 2006. His forthcoming book on the legislative and judicial protection of freedom of information in China will be published by Routledge. He is a member of the International Media Lawyer Association, the Asian Privacy Scholar Network, and the European Chinese Law Studies Association.
Dr. Edward C. Cheng
Edward C. Cheng is a CIO of the University of Hong Kong, assigned as part-time CIO of the HKU-Shenzhen Hospital. Before joining HKU, Edward was the CEO of EGI Technologies, Inc., a CA-based hi-tech company which provides a Cloud-computing and Big Data solution for global companies. Prior to that Edward was R&D Director at Oracle Corporation in the US. He also held senior management positions at Hewlett Packard Co.
His research interests include Big Data, machine learning, medical information systems, collaborative management, social enterprise, high performance systems, and distributive databases. He has published numerous papers and authored three worldwide patents in Big Data. Edward was on the Stanford University Database Research team for three years. Edward received his PhD in CS from the University of London. He has a Master from UC Berkeley, and an MBA from Columbia University, New York.
Edward is the lead inventor of the LSM-Tree, which is implemented in most Big Data Management Systems today including Google, Facebook, Oracle, Microsoft, Hadoop, Cassandra and MongoDB.
Dr. David Erdos
David Erdos is University Lecturer in Law and the Open Society in the Faculty of Law and WYNG Fellow in Law at Trinity Hall, University of Cambridge. His research explores data protection especially as it intersects with freedom of expression and freedom of research. Building on his background in law and political science, his work has developed arguments about the substance and operation of the law in multiple jurisdictions using quantitative and qualitative empirical methods. His doctrinal work has explored the special derogations for journalism, art and literature as well as how to craft a “midway” between this and the default data protection for activities predominantly concerned with self-expression, such as many types of social networking involving indeterminate publication, or which facilitate of a wide variety of purposes, such as general search engines.
Dr. Chih-hsing Ho
Dr. Chih-hsing Ho is Assistant Professor/Assistant Research Fellow at Academia Sinica, Taiwan. Her research focuses on the nexus of law and medicine in general, with particular attention to the governance of genomics and newly emerging biotechnologies, such as big data and biobanks. She is currently a Co-Principal Investigator for a health cloud project in Taiwan, and is responsible for designing an adequate regulatory framework for the secondary use of personal data and health-related data linkage. She holds a Ph.D. in law from the London School of Economics (LSE) where she was an Olive Stone Scholar. She obtained her first law degree from Taiwan, and later received her LLM from Columbia Law School and a JSM from Stanford University. Before moving back to Taipei in 2014, she had been working at the Centre for Medical Ethics and Law (CMEL) at the University of Hong Kong.
Mr. Mark Phillips
Mark Phillips is an Academic Associate at the Centre for Genomics and Policy at McGill University in Montreal, Canada. He is a lawyer with a computer science background, whose work focuses on comparative analysis of data protection, particularly as it bears upon bioinformatics. His research interests also include computer-assisted legal research methodologies and law and social movements.
Prof. Agnes Tiwari
PhD, RN, FAAN, CMgr FCMI. Prof. Tiwari is Head and Professor of School of Nursing of the University of Hong Kong. She is also an Honorary Professor of the Department of Paediatrics and Adolescent Medicine (HKU), School of Chinese Medicine (HKU), Dalian University, Huazhong University of Science and Technology, Peking Union Medical College, and Third Military Medical University of P.R. China, Queen’s University Belfast, University of Queensland, Vanderbilt University, and Professional Fellow of the University of Melbourne. She serves on a number of committees including the Health and Medical Development Advisory Committee of the Hong Kong SAR Government, the Expert Panel on Scientific Research Projects for the National Health and Family Planning Commission, P.R. China, and the World Health Organization’s Advisory Group on Health Sector Response to Violence against Women.
Her clinical research is on family violence prevention and intervention with a special focus on addressing the impact of violence and abuse on health across the life cycle. Her work on evidence-based intervention models has been cited as key evidence to inform policy, practice and research to prevent violence against women and children globally, for example, by the Institute of Medicine Forum on Global Violence Prevention and the WHO Guidelines on Health Sector Response to Violence against Women.
Prof. Tiwari is also an experienced nurse educator with over 20 years of tertiary education experience in curriculum design, development and evaluation. She has published extensively on the use of problem-based learning in the nursing curriculum, the design and evaluation of portfolio assessment, the implementation of outcome-based curriculum, and the development and measurement of critical thinking in Chinese nursing students.
In recognition of her contributions to the nursing profession, she was selected as a Fellow of the American Academy of Nursing in 2010 and appointed as a Chartered Fellow of the Chartered Management Institute of the United Kingdom in 2014. For her teaching achievement, she was awarded the HKU Faculty of Medicine’s Faculty Teaching Medal in 2004 and the HKU Outstanding Teaching Award in 2008. As a recognition of the impact of her research in violence prevention, she was awarded Excellence in Research by the Nursing Network on Violence Against Women International in 2011, Women of Influence 2011 by the American Chamber of Commerce in Hong Kong, the HKU Research Output Prize in 2011 and the 2015-16 Fulbright-RGC Hong Kong Senior Research Scholar Award.
Ms. Jianyuan Yang
Ms. Jianyuan Yang started her legal career as a litigator. She is currently a counsel of Fangda Partners in the firm’s Beijing office. Jianyuan’s practice focuses on Regulatory Compliance, Government Enforcement, and Commercial Litigation and Arbitration. Jianyuan has deep experience across regulatory and compliance work, including representing clients in internal investigations related to suspected violation of FCPA or PRC anticorruption laws, accounting fraud, and conflict of interest, advising clients on compliance due diligence in connection with mergers and acquisitions and third party due diligence, and providing guidance on response to governmental investigation. Jianyuan also has handled domestic and overseas litigation and arbitration proceedings across a broad range of practice areas, including: commercial contracts, product liability, and consumer right protection.
Programme Rundown:
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Registration (FULL):
Admission to the workshop is free, but given the limited places available, registration will be accepted on a first-come, first-served basis.
The Registration is closed (The event is full).
Location map:
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