{"id":8727,"date":"2023-01-13T14:47:41","date_gmt":"2023-01-13T06:47:41","guid":{"rendered":"https:\/\/cmel.hku.hk\/events\/webinar-personal-data-protection-regimes-and-the-sharing-of-human-genetic-data-for-research-2\/"},"modified":"2024-06-29T14:24:08","modified_gmt":"2024-06-29T06:24:08","slug":"webinar-personal-data-protection-regimes-and-the-sharing-of-human-genetic-data-for-research-2","status":"publish","type":"events","link":"https:\/\/cmel.hku.hk\/zh\/events\/webinar-personal-data-protection-regimes-and-the-sharing-of-human-genetic-data-for-research-2\/","title":{"rendered":"(Webinar) Personal Data Protection Regimes and the Sharing of Human Genetic Data for Research"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.14.1&#8243; _module_preset=&#8221;default&#8221; locked=&#8221;off&#8221; collapsed=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.14.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.14.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.14.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: justify;\"><span style=\"color: #000000;\">Human genomic research and innovation are dependent on access to large quantities of data. The \u201copen science\u201d movement has thus gained momentum and fosters the sharing of personal data, datasets, and research results. In such a context, research participants are encouraged to share their genetic materials to support scientific progress as a common good and researchers are encouraged to share their data on the basis that it can maximise the use of a valuable resource, and also lead to more reproducible science.\u00a0 In this webinar, our speakers consider the impact of personal data protection laws in Hong Kong SAR,\u00a0Mainland\u00a0China, Canada, the European Union and the United Kingdom on the sharing of human genetic data for biomedical research, as well as the \u201copen science\u201d movement more generally.<\/span><\/p>\n<p><strong>Webinar Summary<\/strong>:\u00a0<span style=\"color: #000000;\">click <a href=\"https:\/\/cmel.hku.hk\/events\/webinar-personal-data-protection-regimes-and-the-sharing-of-human-genetic-data-for-research-2\/220422_cmel-phg_webinar_summary\/\">here<\/a>\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/cmel.hku.hk\/events\/webinar-personal-data-protection-regimes-and-the-sharing-of-human-genetic-data-for-research-2\/220422_cmel-phg_webinar_summary\/\"><img decoding=\"async\" class=\"alignleft wp-image-6831\" src=\"https:\/\/cmel.hku.hk\/wp-content\/uploads\/\/220608-DRAFT-Cover-for-Webinar-Summary-212x300.jpg\" alt=\"220608 Draft Cover For Webinar Summary\" width=\"165\" height=\"233\" srcset=\"https:\/\/cmel.hku.hk\/wp-content\/uploads\/220608-DRAFT-Cover-for-Webinar-Summary-212x300.jpg 212w, https:\/\/cmel.hku.hk\/wp-content\/uploads\/220608-DRAFT-Cover-for-Webinar-Summary-724x1024.jpg 724w, https:\/\/cmel.hku.hk\/wp-content\/uploads\/220608-DRAFT-Cover-for-Webinar-Summary-768x1087.jpg 768w, https:\/\/cmel.hku.hk\/wp-content\/uploads\/220608-DRAFT-Cover-for-Webinar-Summary-1085x1536.jpg 1085w, https:\/\/cmel.hku.hk\/wp-content\/uploads\/220608-DRAFT-Cover-for-Webinar-Summary-1080x1529.jpg 1080w, https:\/\/cmel.hku.hk\/wp-content\/uploads\/220608-DRAFT-Cover-for-Webinar-Summary-980x1387.jpg 980w, https:\/\/cmel.hku.hk\/wp-content\/uploads\/220608-DRAFT-Cover-for-Webinar-Summary-480x679.jpg 480w, https:\/\/cmel.hku.hk\/wp-content\/uploads\/220608-DRAFT-Cover-for-Webinar-Summary.jpg 1122w\" sizes=\"(max-width: 165px) 100vw, 165px\" \/><\/a><b style=\"color: #000000;\"><\/b><b><\/b><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>Video Recording (click <a href=\"https:\/\/youtu.be\/wVGyg16_fAQ\">here<\/a> to watch it on YouTube):<br \/><iframe style=\"font-size: 16px;\" title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/wVGyg16_fAQ\" width=\"806\" height=\"453.6\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><b>Dr Calvin Ho<\/b><\/p>\n<p><font color=\"#000000\" style=\"font-size: 16px;\">Associate Professor of Law &amp; Co-Director of the Centre for Medical Ethics and Law, The University of Hong Kong, Hong Kong, China<\/font><\/p>\n<p><strong style=\"font-size: 16px;\"><em><span style=\"color: #000080;\">Introduction and Brief Remarks on Genome Data Sharing in Hong Kong SAR<\/span><\/em><\/strong><\/p>\n<p><span style=\"font-family: Arial;\"><\/p>\n<p><span style=\"font-size: 16px;\"><span style=\"color: black;\"> <b><u>Speakers &amp; Presentations<\/p>\n<p><\/u><\/b><\/span><\/p>\n<p><strong><span style=\"color: #000000;\">Dr Haihong Zhang\u00a0<\/span><\/strong><span style=\"color: #000000;\"><\/p>\n<p>Office Director of Peking University Human Research Protection Programme, Health Science Center, Peking University, China<\/p>\n<p><\/span><strong><em><span style=\"color: #000080;\">Title: An ethical perspective on the implications of the Personal Information Protection Law for human genomic research in China<\/span><\/em><\/strong><b><\/p>\n<p><\/b><\/p>\n<p><font color=\"#000000\"><b>Dr Colin Mitchell\u00a0<\/b><\/font><\/p>\n<p><font color=\"#000000\">Head of Humanities, PHG Foundation, University of Cambridge, United Kingdom<\/font><\/p>\n<p><strong><em><span style=\"color: #000080;\">Title: The impact of the UK and EU General Data Protection Regulation (GDPR) on international genomic data sharing for research<\/span><\/em><\/strong><\/p>\n<p><b><\/p>\n<p><\/b><strong><span style=\"color: #000000;\">Prof Yann Joly\u00a0<\/span><\/strong><span style=\"color: #000000;\"><\/p>\n<p>Research Director, Centre of Genomics and Policy (CGP)<\/p>\n<p>Professor, Department of Human Genetics, Faculty of Medicine<\/p>\n<p>McGill University, Canada<\/p>\n<p><\/span><em><span style=\"color: #000080;\"><strong>Title: Canadian Genome Data Sharing: Lessons learned from the experience of the CanCOGeN Network<\/strong><\/span><\/em><\/p>\n<p><b><\/p>\n<p><span style=\"color: black;\">Co-organisers:<\/span><\/b><\/p>\n<p><span style=\"color: black;\">Centre for Medical Ethics and Law, The University of Hong Kong<\/p>\n<p><\/span><span style=\"color: #000000;\">The PHG Foundation<\/span><\/p>\n<p><b><span style=\"color: black;\">Fees:<\/p>\n<p><\/span><\/b><span style=\"color: black;\">Free of charge<\/span><span style=\"color: black;\"><\/p>\n<p><\/span><span style=\"color: black;\"><b><\/p>\n<p>Subscribe to our centre:<\/b><\/span><\/p>\n<p><span style=\"color: black;\">To stay connected, please subscribe to us by filling out\u00a0<\/span><\/p>\n<p><\/span><\/span><span style=\"color: black; font-family: Arial, sans-serif;\"><a href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSdGfztJ35EYtfY2Q3fBOyQFhJ6r0aJJuvURKDZdWzrYT1XfCg\/viewform\" target=\"_blank\" rel=\"noopener\"><span style=\"font-family: Arial;\"><span style=\"font-size: 16px;\">this form<\/span><\/span><\/a><\/span><span style=\"font-family: Arial;\"><span style=\"font-size: 16px;\"><span style=\"color: black;\">.<\/span><\/span><\/span><\/p>\n<p>&nbsp;<\/p>\n<p><\/iframe><\/p>\n<p><b style=\"color: black; font-family: Arial, sans-serif;\">Programme, Abstracts &amp; Biographies:<\/b><span style=\"color: #000000;\"> click <\/span><span style=\"color: #000000;\"><b><a href=\"https:\/\/cmel.hku.hk\/events\/webinar-personal-data-protection-regimes-and-the-sharing-of-human-genetic-data-for-research-2\/20220422_webinar_booklet-2\/\">here<\/a><\/b><\/span><\/p>\n<p><b style=\"color: black; font-family: Arial, sans-serif;\">Background Document for the Webinar, &#8220;<\/b><span style=\"color: #000000; font-family: Arial, sans-serif;\"><b>The GDPR, UK GDPR and international transfers of personal data<\/b><\/span><b style=\"color: black; font-family: Arial, sans-serif;\">&#8220;:\u00a0<\/b><span style=\"color: #000000;\">click <\/span><strong><span style=\"color: #000000;\"><a href=\"https:\/\/cmel.hku.hk\/events\/webinar-personal-data-protection-regimes-and-the-sharing-of-human-genetic-data-for-research-2\/220422_cmel-phg_webinar_document\/\">here<\/a><\/span><\/strong><span style=\"color: #000000;\"><b><a href=\"https:\/\/www.cmel.hku.hk\/upload\/files\/220422_CMEL-PHG_webinar_document.pdf\"><br \/><\/a><a href=\"https:\/\/cmel.hku.hk\/events\/webinar-personal-data-protection-regimes-and-the-sharing-of-human-genetic-data-for-research-2\/220422_cmel-phg_webinar_document\/\"><img decoding=\"async\" class=\"alignleft wp-image-6844\" src=\"https:\/\/cmel.hku.hk\/wp-content\/uploads\/220422_Webinar_background_document_PHG.png\" alt=\"Cover\" width=\"131\" height=\"160\" \/><\/a><\/b><\/span><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p><span style=\"font-family: Arial;\"><span style=\"color: black;\"><b><u>Chair<br \/><\/u><\/b><\/span><span style=\"color: #000000;\"><b>Dr Calvin Ho<\/b><\/span><br \/><span style=\"color: #000000;\">Associate Professor of Law &amp; Co-Director of the Centre for Medical Ethics and Law, The University of Hong Kong, Hong Kong, China<\/span><br \/><strong><em><span style=\"color: #000080;\">Introduction and brief remarks on genome data sharing in Hong Kong SAR<\/span><\/em><\/strong><\/span><\/p>\n<p><span style=\"color: black;\"><b><u>Speakers &amp; Presentations<br \/><\/u><\/b><\/span><br \/><strong><span style=\"color: #000000;\">Dr Haihong Zhang\u00a0<\/span><\/strong><span style=\"color: #000000;\"><br \/>Office Director of Peking University Human Research Protection Programme, Health Science Center, Peking University, China<br \/><\/span><strong><em><span style=\"color: #000080;\">Title: An ethical perspective on the implications of the Personal Information Protection Law for human genomic research in China<\/span><\/em><\/strong><b><br \/><\/b><br \/><span style=\"color: #000000;\"><b>Dr Colin Mitchell\u00a0<\/b><\/span><br \/><span style=\"color: #000000;\">Head of Humanities, PHG Foundation, University of Cambridge, United Kingdom<\/span><br \/><strong><em><span style=\"color: #000080;\">Title: The impact of the UK and EU General Data Protection Regulation (GDPR) on international genomic data sharing for research<\/span><\/em><\/strong><br \/><b><br \/><\/b><strong><span style=\"color: #000000;\">Prof Yann Joly\u00a0<\/span><\/strong><span style=\"color: #000000;\"><br \/>Research Director, Centre of Genomics and Policy (CGP)<br \/>Professor, Department of Human Genetics, Faculty of Medicine<br \/>McGill University, Canada<br \/><\/span><em><span style=\"color: #000080;\"><strong>Title: Canadian genome data sharing: Lessons learned from the experience of the CanCOGeN Network<\/strong><\/span><\/em><br \/><b><br \/><span style=\"color: black;\">Co-organisers:<\/span><\/b><br \/><span style=\"color: black;\">Centre for Medical Ethics and Law, The University of Hong Kong<br \/><\/span><span style=\"color: #000000;\">The PHG Foundation,\u00a0<\/span><span style=\"color: #000000; font-family: Arial;\">University of Cambridge<\/span><\/p>\n<p><b><span style=\"color: black;\">Fees:<br \/><\/span><\/b><span style=\"color: black;\">Free of charge<\/span><span style=\"color: black;\"><br \/><\/span><span style=\"color: black;\"><b><br \/>Subscribe to our centre:<\/b><\/span><br \/><span style=\"color: black;\">To stay connected, please subscribe to us by filling out\u00a0<\/span><span style=\"color: black; font-family: Arial, sans-serif;\"><a href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSdGfztJ35EYtfY2Q3fBOyQFhJ6r0aJJuvURKDZdWzrYT1XfCg\/viewform\" target=\"_blank\" rel=\"noopener\"><span style=\"font-family: Arial;\">this form<\/span><\/a><\/span><span style=\"font-family: Arial;\"><span style=\"color: black;\">.<\/span><\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"featured_media":4587,"template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","inline_featured_image":false},"events_types":[262],"events_feature":[126],"events_year":[127],"class_list":["post-8727","events","type-events","status-publish","has-post-thumbnail","hentry","events_types-public-talks-zh","events_feature-other-events-zh","events_year-2022-zh"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.1 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>(Webinar) Personal Data Protection Regimes and the Sharing of Human Genetic Data for Research - Centre for Medical Ethics and Law<\/title>\n<meta name=\"description\" content=\"asd\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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