{"id":11922,"date":"2023-10-05T11:15:33","date_gmt":"2023-10-05T03:15:33","guid":{"rendered":"https:\/\/cmel.hku.hk\/events\/regulatory-governance-of-emerging-health-technologies\/"},"modified":"2025-07-09T17:02:29","modified_gmt":"2025-07-09T09:02:29","slug":"regulatory-governance-of-emerging-health-technologies","status":"publish","type":"events","link":"https:\/\/cmel.hku.hk\/zh\/events\/regulatory-governance-of-emerging-health-technologies\/","title":{"rendered":"Regulatory Governance of Genomics &#038; Reproductive Technologies"},"content":{"rendered":"<p><span style=\"color: #000000;\"><strong>Video recording on Dec 4 Afternoon Session &#8211; Advances in Genomics (Click <\/strong><span style=\"color: #0000ff;\"><strong><a style=\"color: #0000ff;\" href=\"https:\/\/youtu.be\/NdEzi--81vE\">here<\/a><\/strong><\/span><strong> for full screen view):<\/strong><br \/>\n<iframe src=\"https:\/\/www.youtube.com\/embed\/NdEzi--81vE\" width=\"900\" height=\"500\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe> <\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Video recording on Dec 5 Morning Session &#8211; Reproductive Technologies (Click <\/strong><span style=\"color: #0000ff;\"><strong><a style=\"color: #0000ff;\" href=\"https:\/\/youtu.be\/7jdRvaFqbT4\">here<\/a><\/strong><\/span><strong> for full screen view):<\/strong><br \/>\n<iframe src=\"https:\/\/www.youtube.com\/embed\/7jdRvaFqbT4\" width=\"900\" height=\"500\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe> <\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Video recording on Dec 5 Afternoon Session &#8211; Reproductive Technologies (Click <\/strong><span style=\"color: #0000ff;\"><strong><a style=\"color: #0000ff;\" href=\"https:\/\/youtu.be\/GlFqpp_X5P4\">here<\/a><\/strong><\/span><strong> for full screen view):<\/strong><br \/>\n<iframe src=\"https:\/\/www.youtube.com\/embed\/GlFqpp_X5P4\" width=\"900\" height=\"500\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe> <\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>Video recording on Dec 6 Final Session &#8211; Access to Novel Technologies (Click <\/strong><span style=\"color: #0000ff;\"><strong><a style=\"color: #0000ff;\" href=\"https:\/\/youtu.be\/KPO_7ayVP5c\">here<\/a><\/strong><\/span><strong> for full screen view):<\/strong><br \/>\n<iframe src=\"https:\/\/www.youtube.com\/embed\/KPO_7ayVP5c\" width=\"900\" height=\"500\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe> <\/span><\/p>\n<p><strong>Timetable (\u6642\u9593\u8868):<br \/>\n<\/strong>English Version: Click\u00a0<a role=\"link\" href=\"https:\/\/cmel.hku.hk\/wp-content\/uploads\/231204-GRT-Timetable.pdf\">here<\/a><br \/>\n\u4e2d\u6587\u7248: <a role=\"link\" href=\"https:\/\/cmel.hku.hk\/wp-content\/uploads\/231204-HKG-GRT-Programme-Timetable-231204-cn-Final-Draft.pdf\">\u6309\u6b64<\/a><\/p>\n<p><strong>Program Booklet (\u4f1a\u8bae\u624b\u518c):\u00a0<\/strong><br \/>\nEnglish Version: Click\u00a0<a role=\"link\" href=\"https:\/\/cmel.hku.hk\/wp-content\/uploads\/231204-Booklet.pdf\">here<\/a><\/p>\n<p>*Interpretation in English &amp; Mandarin will be available on 4-6 Dec (\u5c07\u65bc12\u67084\u81f36\u65e5\u63d0\u4f9b\u82f1\u8a9e\u53ca\u666e\u901a\u8a71\u540c\u8072\u50b3\u8b6f).<\/p>\n<p>with support from the Medical Ethics &amp; Humanities Unit (Faculty of Medicine), the Centre for Medical Ethics and Law is delighted to present an international conference that seeks to examine:<\/p>\n<p>(1)\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 What is the \u201cregulatory state\u201d vis-\u00e0-vis biomedical R&amp;D, who are the key actors and what are their roles?<br \/>\n(2)\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 What is law in the \u201cregulatory state\u201d and what is its contribution to this phenomenon and to biomedical R&amp;D?<br \/>\n(3)\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 What is bioethical in the \u201cregulatory state\u201d and what is its contribution to this phenomenon and to biomedical R&amp;D?<br \/>\n(4)\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 To what extent are the goals of (2) consistent with those of (3)? How are conflicts (if any) resolved?<br \/>\n(5)\u00a0 \u00a0 \u00a0 \u00a0What are the normative implications of the rise of the \u201cregulatory state\u201d on global governance of biomedical R&amp;D?<\/p>\n<p>Recent advances in genetics and human reproductive technologies continue to present distinctive ethical and legal challenges. For instance, advances in high-throughput sequencing technologies have enabled the detection of chromosomal abnormalities in a foetus through non-invasive prenatal testing (or NIPT). Expanded testing conducted in NIPT has further raised concerns as to whether a child\u2019s right to an open future requires parental freedoms to be curtailed. In a research context, it is as yet unclear whether and when actionable genomic results in a research biobank should be returned to an individual or otherwise shared with third parties who could potentially benefit from having access to these results. In this international conference, leading scholars examine the nature and implications of the regulatory governance of emerging genetic and reproductive technologies, as well as the rise of the regulatory state in promoting biomedical research and development (R&amp;D) through the use of direct and indirect rules, and in the variety of regulatory regimes involving non-state actors (e.g. private regulation, self-regulation and civil regulation) that have emerged.<\/p>\n<p><strong>Key Themes:<\/strong><br \/>\nAdvances in Genomics;<br \/>\nReproductive Technologies;<br \/>\nAccess to Novel Technologies<\/p>\n<p><strong>Chairs:<\/strong><br \/>\n<strong>Dr Calvin W.L. Ho &amp;<\/strong><br \/>\n<strong>Prof Gilberto K.K. Leung<\/strong><br \/>\nCentre for Medical Ethics and Law, Faculties of Law &amp; Medicine, The University of Hong Kong<\/p>\n<p><span style=\"color: #0000ff;\"><span style=\"text-decoration: underline;\"><strong>\u201cAdvances in Genomics\u201d<\/strong><\/span><br \/>\nDay 1 Afternoon Session<br \/>\n4 Dec (Mon) 14:15-18:15 (HKT)<\/span><\/p>\n<p><strong>Dr Katherine Littler <\/strong>World Health Organization, Geneva<br \/>\n<strong>Prof Xiaomei Zhai<\/strong> Tsinghua University<br \/>\n<strong>Prof Kathleen Liddell<\/strong> University of Cambridge<br \/>\n<strong>Prof Mateo Aboy<\/strong> University of Cambridge<br \/>\n<strong>Prof Yann Joly<\/strong> McGill University<br \/>\n<strong>Dr Colin Mitchell<\/strong> University of Cambridge<br \/>\n<strong>Dr Chih-Hsing Ho<\/strong>\u00a0Academia Sinica<br \/>\n<strong>Ms Momoko Sato<\/strong> RIKEN, Japan<\/p>\n<p><span style=\"text-decoration: underline;\"><span style=\"color: #0000ff;\"><strong>\u201cReproductive Technologies\u201d<\/strong><\/span><\/span><br \/>\n<span style=\"color: #0000ff;\">Day 2 Morning Session <\/span><br \/>\n<span style=\"color: #0000ff;\">5 Dec (Tue) 10:00-12:30 (HKT)<\/span><\/p>\n<p><strong>Prof Jane Kaye<\/strong> University of Oxford<br \/>\n<strong>Dr Derrick Au<\/strong> Chinese University of Hong Kong &amp; Hong Kong Genome Institute<br \/>\n<strong>Dr Sarah Chan<\/strong>\u00a0University of Edinburgh<br \/>\n<strong>Prof Sir Jonathan Montgomery<\/strong> University College London<\/p>\n<p><span style=\"color: #0000ff;\">Day 2 Afternoon Session <\/span><br \/>\n<span style=\"color: #0000ff;\">5 Dec (Tue) 14:00-18:15 (HKT)<\/span><\/p>\n<p><strong>Dr Catherine Mills<\/strong> Monash University, Melbourne<br \/>\n<strong>Dr Bernadette Richards<\/strong> University of Queensland<strong><strong><br \/>\n<strong>Prof Fr. Joseph Tham <\/strong><\/strong><\/strong>LC Regina Apostolorum Pontifical University, Italy<strong><strong><br \/>\n<strong>Prof Ainsley Newson <\/strong><\/strong><\/strong>University of Sydney<strong><strong><br \/>\n<strong>Prof Yonghui Ma <\/strong><\/strong><\/strong>Xiamen University<strong><br \/>\n<strong>Dr Peter Mills <\/strong><\/strong>University of Cambridge<strong><strong><br \/>\n<\/strong><strong>Prof Sara J Fovargue <\/strong><\/strong>Sheffield Law School<\/p>\n<p>&nbsp;<\/p>\n<p><strong><span style=\"text-decoration: underline;\"><span style=\"color: #0000ff; text-decoration: underline;\">\u201cAccess to Novel Technologies\u201d<\/span><\/span><\/strong><br \/>\n<span style=\"color: #0000ff;\">Day 3 Morning Session<\/span><br \/>\n<span style=\"color: #0000ff;\">6 Dec (Wed) 09:15-13:00 (HKT) <\/span><\/p>\n<p><strong>Prof Kaori Muto<\/strong> University of Tokyo<br \/>\n<strong>Dr Matilda Haas<\/strong> Australian Genomics<br \/>\n<strong>Dr Olivia Ngan<\/strong> The University of Hong Kong<br \/>\n<strong>Dr Caitlyn A Tabor<\/strong> Harvard Medical School<br \/>\n<strong>Ms Tanya Brigden<\/strong> University of Cambridge<br \/>\n<strong>Dr Barry Solaiman<\/strong> Hamad Bin Khalifa University<\/p>\n<p><strong>Organiser:<\/strong><br \/>\nCentre for Medical Ethics and Law (CMEL), The University of Hong Kong<\/p>\n<p><strong>Supporting Organisation:<\/strong><br \/>\nMedical Ethics and Humanities Unit, The University of Hong Kong<\/p>\n","protected":false},"featured_media":10030,"template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","inline_featured_image":false},"events_types":[125],"events_feature":[],"events_year":[580],"class_list":["post-11922","events","type-events","status-publish","has-post-thumbnail","hentry","events_types-conferences-zh","events_year-2023-zh"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.1 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Regulatory Governance of Genomics &amp; 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